I have been dianosed yesterday with cluster migraines. Oh boy this was a shock when it hit last night. I have had migraines in the past but this was scary.
My left eye swelled and pain spread down my face. I could not cope with light and felt terribly sick. I was quite scared. We phoned the doctors straight away and was given an appointment straigtht away at the out of hours service. We got there and the doctor was extremely kind.
I thought it may have been a link to Bells Palsy again something I have suffered with in the past.
When he told me it was a cluster migraine I was relieved it was nothing more serious. I have a lot of medication at home and luckily some of that will treat this condition.
I was relieved to be going back home. Poor Steve was up and down like a yo yo in the night looking after me as I was unable to pull the covers back onto the sofa where I am sleeping and during the night I ended up moaning in my sleep so he came down to comfort me.
I am glad it was nothing more serious.
I have had enough of being ill.
Best wishes
Fee
Thursday 30 April 2009
Sunday 19 April 2009
Struggling
I was hoping to have finished a cot blanket. I had completed all the 64 individually knitted squares and then hit disaster last night. I could not get them to sew up correctly. My hands being swollen does not help but I was determined to give it a go. Steve looked at my efforts and took it around to a neighbour. She commented on one of my seams and that made me want to make it perfectly. I therefore tried unpicking the seam I had sewn only to discover it was not a seam I was unpicking but the squares themselves.
So I will endeavour to try again and make the squares match up again.
I hope I can complete it as I am not a defeatist.
Best wishes
Fee
So I will endeavour to try again and make the squares match up again.
I hope I can complete it as I am not a defeatist.
Best wishes
Fee
Wednesday 15 April 2009
Hospital again
I am off to hospital today. Can't believe this time last week I was getting ready for a bone scan. Today I see a rheumatologist so a long queue at the appointment desk before being herded into the main waiting room only then to be called to whichever clinic area I need to go to.
I just don't understand why when you have an appointment you can't go straight to the clinic area you need to go to especially if you regularly but that is not the procedure. The reason is that at the appointments desk is where the notes are stored and when you arrived your notes are passed by a secretary to a WRVS volunteer who then calls you from the main waiting area.
When I was a medical secretary many moons ago the notes were automatically with you at the clinic and you just passed them directly to the consultant as each patient arrived and they were then retrieved at the end of each appointment and transport arrangements were noted for those that needed them.
So am not looking forward to this morning and the queues at all.
To have to pay for the privilege of parking is also another necessity for me oh well at least I am prepared and have my £2 ready.
Just got to drag this weary body off to have a shower and brush up and then climb into leisure gear in case I end up having further tests that I have already encountered lets hope its not another visit to the "Vampire" blood tests to you and me.
Not lost my sense of humour but nearly did in the last few weeks I have had.
Hope everyone else is ok.
Best wishes
Fee
I just don't understand why when you have an appointment you can't go straight to the clinic area you need to go to especially if you regularly but that is not the procedure. The reason is that at the appointments desk is where the notes are stored and when you arrived your notes are passed by a secretary to a WRVS volunteer who then calls you from the main waiting area.
When I was a medical secretary many moons ago the notes were automatically with you at the clinic and you just passed them directly to the consultant as each patient arrived and they were then retrieved at the end of each appointment and transport arrangements were noted for those that needed them.
So am not looking forward to this morning and the queues at all.
To have to pay for the privilege of parking is also another necessity for me oh well at least I am prepared and have my £2 ready.
Just got to drag this weary body off to have a shower and brush up and then climb into leisure gear in case I end up having further tests that I have already encountered lets hope its not another visit to the "Vampire" blood tests to you and me.
Not lost my sense of humour but nearly did in the last few weeks I have had.
Hope everyone else is ok.
Best wishes
Fee
Friday 10 April 2009
Another Hospital Appointment Looms
Yet another hospital appointment looms. They seem to be coming like buses you wait for ages then they all come at once.
One thing I am doing though is counteracting them with positive things to do as much as possible like trying to sit on the sofa watching DVDs with my new husband (still can't believe we not had our honeymoon yet). What matters most is we get through all this together.
Honeymoons are a luxury we can ill afford at the moment what with various hospital appointments not knowing when or where I will get a call for the next appointment. This feels like a nightmare at times.
I am desperately trying to stay positive so that the severe depression does not win. It is so hard to do this as the slightest thing can bring it on.
I do what I can to alleviate the symptoms I try not to rely on too much medication and this seems to be working but there are days when I am human and get down.
I want to change the way things are done that get me down and I want it done like yesterday. I know I am not alone in the form filling nightmare with regards to benefits and feel that there should be a better way forward than what there currently is.
I counted up my consultants yesterday so far I have 10 and yet I still have to apply for DLA nearly every six months and these forms are a nightmare without the help of someone who knows the wording that is wanted for these forms it is nigh on impossible to get the benefits you are entitled to. I know I have been there too many times and in January finally got someone from the DWP to help us with these. Even with their help I have only been awarded DLA until 2010.
This means more form filling next year. I wish I wasn't so ill I wish I was "normal". I used to run, skip, jump and really enjoy life now every day is full of pain of some sort whether it be physical or mental it just drains my soul.
Some days I wake up and think what is the point of today, what can I do to make a difference? If I feel too ill the answer is rest and do nothing. Other times it is get out there and complain to my MP or write letters or campaign in anyway I can to try and change things.
Other days it is just putting my thoughts on to paper that helps me through the day.
Best of all I love surprising people as to see the joy on their faces means so much to me.
I just wish things were different in so many ways but they are not. They have happened for a reason to me and I have to fathom out what I can do to change things to help others who follow this horrid journey.
It is not all doom and gloom as I say I hardly sit here feeling sorry for myself I try and change things one way or another.
Whether it be a phone call to say thank you to someone and cheer them up makes a huge difference to me.
I just have to cope as best as I can. No one knows how they react until it happens to them and that is the honest truth. No one can say I would do this and be certain they would. I know I have been there and come out the other side. I am still doing that with various illnesses and it is tough having everything thrown at me at once. I just cope as best as I can and if anyone judges me for it then so be it.
It is like me not wearing my prothesis I am far more comfortable without it and am happier without it therefore I hardly wear it. If I get judged for that which I often do I turn around and say how would you feel if it happened to you?
Everyone of us is unique I am me and I stand up as me to be counted and help others.
Despite all the pain, sadness and what else life throws at me I face my fears and get on with whatever I have to do to get through life.
I am so lucky to have support and I know how much friends mean.
Best wishes
Fee
One thing I am doing though is counteracting them with positive things to do as much as possible like trying to sit on the sofa watching DVDs with my new husband (still can't believe we not had our honeymoon yet). What matters most is we get through all this together.
Honeymoons are a luxury we can ill afford at the moment what with various hospital appointments not knowing when or where I will get a call for the next appointment. This feels like a nightmare at times.
I am desperately trying to stay positive so that the severe depression does not win. It is so hard to do this as the slightest thing can bring it on.
I do what I can to alleviate the symptoms I try not to rely on too much medication and this seems to be working but there are days when I am human and get down.
I want to change the way things are done that get me down and I want it done like yesterday. I know I am not alone in the form filling nightmare with regards to benefits and feel that there should be a better way forward than what there currently is.
I counted up my consultants yesterday so far I have 10 and yet I still have to apply for DLA nearly every six months and these forms are a nightmare without the help of someone who knows the wording that is wanted for these forms it is nigh on impossible to get the benefits you are entitled to. I know I have been there too many times and in January finally got someone from the DWP to help us with these. Even with their help I have only been awarded DLA until 2010.
This means more form filling next year. I wish I wasn't so ill I wish I was "normal". I used to run, skip, jump and really enjoy life now every day is full of pain of some sort whether it be physical or mental it just drains my soul.
Some days I wake up and think what is the point of today, what can I do to make a difference? If I feel too ill the answer is rest and do nothing. Other times it is get out there and complain to my MP or write letters or campaign in anyway I can to try and change things.
Other days it is just putting my thoughts on to paper that helps me through the day.
Best of all I love surprising people as to see the joy on their faces means so much to me.
I just wish things were different in so many ways but they are not. They have happened for a reason to me and I have to fathom out what I can do to change things to help others who follow this horrid journey.
It is not all doom and gloom as I say I hardly sit here feeling sorry for myself I try and change things one way or another.
Whether it be a phone call to say thank you to someone and cheer them up makes a huge difference to me.
I just have to cope as best as I can. No one knows how they react until it happens to them and that is the honest truth. No one can say I would do this and be certain they would. I know I have been there and come out the other side. I am still doing that with various illnesses and it is tough having everything thrown at me at once. I just cope as best as I can and if anyone judges me for it then so be it.
It is like me not wearing my prothesis I am far more comfortable without it and am happier without it therefore I hardly wear it. If I get judged for that which I often do I turn around and say how would you feel if it happened to you?
Everyone of us is unique I am me and I stand up as me to be counted and help others.
Despite all the pain, sadness and what else life throws at me I face my fears and get on with whatever I have to do to get through life.
I am so lucky to have support and I know how much friends mean.
Best wishes
Fee
Thursday 9 April 2009
Not been around for a while - I am radioactive
I have not been able to post on my blogs for a while.
The reason is I have been ill with one thing and another. I am currently radio-active until later tonight due to the fact I had to have a bone scan done. This came as a complete shock as on Monday morning a breast care nurse telephoned me and asked if I had ever had one. When I gave her my hospital number which I know off by heart the number of times I have been there she checked and said "you have never had a bone scan".
On Tuesday morning I received a telephone call informing me that one had been arranged for the following day (yesterday). She went into great detail about needles and from that moment on I could not take in anything else she said. The reason is I have a fear of needles. I had no idea I had this fear until I went with someone to hospital to have a baby it was while they were cross matching her blood two nurses were carrying me out of the room as when I had seen the needle I had fainted.
So now I look away or tend to cope with the situations as best as possible.
I am feeling much better now thanks to friends who have supported me through this horrid ordeal.
I haven't felt my usual self for a while now but am starting to get back on my feet.
I am so glad I have my writing which I nearly gave up on thanks to one of my illnesses virtually taking over.
I will post my positive thoughts on my other blog in a moment but that is the current update for now.
Best wishes
Fee
The reason is I have been ill with one thing and another. I am currently radio-active until later tonight due to the fact I had to have a bone scan done. This came as a complete shock as on Monday morning a breast care nurse telephoned me and asked if I had ever had one. When I gave her my hospital number which I know off by heart the number of times I have been there she checked and said "you have never had a bone scan".
On Tuesday morning I received a telephone call informing me that one had been arranged for the following day (yesterday). She went into great detail about needles and from that moment on I could not take in anything else she said. The reason is I have a fear of needles. I had no idea I had this fear until I went with someone to hospital to have a baby it was while they were cross matching her blood two nurses were carrying me out of the room as when I had seen the needle I had fainted.
So now I look away or tend to cope with the situations as best as possible.
I am feeling much better now thanks to friends who have supported me through this horrid ordeal.
I haven't felt my usual self for a while now but am starting to get back on my feet.
I am so glad I have my writing which I nearly gave up on thanks to one of my illnesses virtually taking over.
I will post my positive thoughts on my other blog in a moment but that is the current update for now.
Best wishes
Fee
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