The worst week ever is now over

I have not been feeling great for a while but the symptoms are not permanent they come and go sporadically. So I am patiently waiting for a scan.

My back locked up in front of my paid carer on Thursday morning. She just stood there as due to "insurance" she is not allowed to help me move. I fully understand this as they are meant to have two care workers to lift someone once a diagnosis has been made".

This has now meant that Steve has had to give up work to care for me as I keep have these "moments" when I can't move my neck downwards apart from my left arm and my head and of course my mouth. Steve said the other day "I wish it was her mouth she couldn't move". I know its because I get grumpy when I get pain and I am scared its all natural when something like this happens.

So as of now Steve and I will be together in the house as much as possible. This means a new timetable has to be set up of antibiotics (yes yet another lot to take) and my painkillers and muscle relaxant. Antibiotics have to be timed an hour before food this therefore has a huge bearing on the timetable.

Once I have my muscle relaxants I am completely doped up and out of it so have to be monitored to stop me falling over or harming myself.

Also to incorporate into this timetable is "me" time for both Steve and I.

On top of that I want to keep busy with my writing and my charity work.

Sometimes things seem a huge task but if I break them down and just deal with one phone call at a time I am fine.

It is just the here and now I have to cope with. Not one day at a time but one minute at a time is how I am living right now.

Best wishes

Fee